This Must Be the Place: New Books and Documentaries to Stoke Your Musical Nostalgia

There’s this article from The Onion that my husband and I keep chuckling over. The joke headline is “Cool Dad Raising Daughter on Media That Will Put Her Entirely Out of Touch with Her Generation,” and it’s followed by a photo of a middle-aged man presenting a girl with a vinyl copy of the Talking Heads Remain in Light as she regards the album in her hands with utter skepticism. We may or may not have played that very album for our kids before heading to New Haven to watch former Talking Heads members—now septuagenarians—perform it live. That joke article is about us.

Anyone who’s interrupted a Disney playlist to subject their progeny to a few excruciating minutes of A Very Important Music Thing can relate. We want to share the things we love with the people we love. We want them to know who we are. It could be music or movies, hobbies, sports teams, longtime vacation spots. For me, it’s reggae and Joni Mitchell’s Blue and Neil Young’s Harvest, all of which I heard as a kid on weekend mornings. It’s hurtling down the interstate in a car full of teenagers scream-singing along to Jimmy Eat World’s “Sweetness” or Jay-Z’s “Dirt Off Your Shoulder” or Underworld’s “Born Slippy.” It’s the first two Decemberists albums, played as my future husband and I aimlessly wandered the backroads near the town we were so very desperate to leave. This music is as much me as the cells in my body. So now I sing “Heart of Gold” and “The Crane Wife” to my kids as bedtime lullabies, and for background noise I play Bob Marley and classic R&B songs that were sampled by rappers.

Until the kids are old enough for evening concerts, I’m passing my limited free time by reading and watching documentaries about music, especially the scenes and artists that have dimmed the stage lights for the last time. Did you know that emo was a product of the suburbs? (Thanks, Andy Greenwald!) Or that Carrie Brownstein, half of the hilarious duo on Portlandia, was part of Olympia’s feminist Riot Grrrl movement in the early 90’s? Here’s some recent media if you’re feeling nostalgic for the sounds of the past.

Night People: How to be a DJ in ’90s NYC by Mark Ronson (2025)

From the publisher: Organized around the venues that defined his experience of the downtown scene, Ronson evokes the specific rush of that decade and those spaces—where fashion folks and rappers on the rise danced alongside club kids and 9-to-5’ers—and invites us into the tribe of creatives and partiers who came alive when the sun went down. A heartfelt coming-of-age tale, Night People is the definitive account of ’90s New York nightlife and the making of a musical mastermind.

Tonight in Jungleland: The Making of Born to Run by Peter Ames Carlin (2025)

From the publisher: From the opening piano notes of “Thunder Road,” to the final outro of “Jungleland”—with American anthems like “Born to Run” and “Tenth Avenue Freeze Out” in between—Bruce Springsteen’s seminal album, Born to Run, established Springsteen as a creative force in rock and roll. With his back against the wall, he wrote what has been hailed as a perfect album, a defining moment, and a roadmap for what would become a legendary career. Peter Ames Carlin, whose bestselling biography, Bruce, gave him rare access to Springsteen’s inner circle, now returns with the full story of the making of this epic album. Released in August, 1975, Born to Run now celebrates its 50th anniversary.

Hip-Hop Is History by Questlove (2024)

From the publisher: Questlove traces the creative and cultural forces that made and shaped hip-hop, highlighting both the forgotten but influential gems and the undeniable chart-topping hits-and weaves it all together with the stories no one else knows. It is at once an intimate, sharply observed story and a sweeping theory of the evolution of the great artistic movement of our time. Questlove approaches it with both the encyclopedic fluency of an obsessive fan and the unique expertise of an innovative participant. Hip-hop is history, and also his history.

Psst: If you prefer to watch a documentary, Questlove’s Hip-Hop Evolution (2016) runs along similar lines. It’s available on Netflix.

Sharing in the Groove: The Untold Story of the ’90s Jam Band Explosion and the Scene that Followed by Mike Ayers (2025) 

From the publisher: Sharing in the Groove is a rich examination of an underdog genre that helped define the 1990s musical landscape―a scene that paved the way for modern-day cultural institutions such as the Bonnaroo Music Festival and kept the Grateful Dead ethos alive. It was also a world with its own values and its own unique interactions with fame, record labels, MTV, drugs, and success.

The Name of This band is R.E.M.: A Biography by Peter James Carlin (2024)

From the publisher: Deeply descriptive and remarkably poetic, steeped in 80s and 90s nostalgia, The Name of This Band is R.E.M. paints a cultural history of the commercial peak and near-total collapse of a great music era, and the story of the generation that came of age at the apotheosis of rock.

The Harder I Fight the More I Love You by Neko Case (2025)

From the publisher: Case brings her trademark candor and precision to a memoir that traces her evolution from an invisible girl “raised by two dogs and a space heater” in rural Washington state to her improbable emergence as an internationally-acclaimed talent. In luminous, sharp-edged prose, Case shows readers what it’s like to be left alone for hours and hours as a child, to take refuge in the woods around her home, and to channel the monotony and loneliness and joy that comes from music, camaraderie, and shared experience into art.

How Women Made Music: A Revolutionary History from NPR Music edited by Alison Fensterstock (2024)

From the publisher: Drawn from NPR Music’s acclaimed, groundbreaking series Turning the Tables, the definitive book on the vital role of Women in Music—from Beyoncé to Odetta, Taylor Swift to Joan Baez, Joan Jett to Dolly Parton—featuring archival interviews, essays, photographs, and illustrations.

The Jazzmen: How Duke Ellington, Louis Armstrong, and Count Basie Transformed America by Larry Tye (2024)

From the publisher: This is the story of three revolutionary American musicians, the maestro jazzmen who orchestrated the chords that throb at the soul of twentieth-century America… What is far less known about these groundbreakers is that they were bound not just by their music or even the discrimination that they, like nearly all Black performers of their day, routinely encountered. Each defied and ultimately overcame racial boundaries by opening America’s eyes and souls to the magnificence of their music. In the process they wrote the soundtrack for the civil rights movement.

Rebel Girl: My Life as a Feminist Punk by Kathleen Hanna (2024)

From the publisher: An electric, searing memoir by the original rebel girl and legendary front woman of Bikini Kill and Le Tigre… As Hanna makes clear, being in a “girl band,” especially a punk girl band, in those years was not a simple or safe prospect. Male violence and antagonism threatened at every turn, and surviving as a singer who was a lightning rod for controversy took limitless amounts of determination. But the relationships she developed during those years buoyed her–including with her bandmates, Tobi Vail, Kathi Wilcox, and Johanna Fateman; her friendships with Kurt Cobain and Ian MacKaye; and her introduction to Joan Jett- were all a testament to how the punk world could nurture and care for its own.

Music by John Williams (2024) Produced and directed by Laurent Bouzereau

My favorite music documentaries fill me to the brim with joy (see: Twenty Feet from Stardom)  and this journey through the most iconic music in cinema history does just that. Williams wrote the scores for Star Wars, Jurassic Park, Indiana Jones, E.T., Harry Potter, Jaws, and lots of other movies that are memorable in part due to Williams’ mastery. It’s only available on Disney+, but it’s worth a trial if you aren’t already a subscriber.

Summer of Soul: (…Or, When the Revolution Could Not Be Televised) (2022) Directed by Questlove

I’m cheating a little here when it comes to “recent” releases, but this is another piece of joy. It follows the 1969 Harlem Cultural Festival, which was overshadowed by Woodstock and hardly made a blip on the radar. You’ll get the context of the almost-forgotten festival, along with footage of Stevie Wonder, Nina Simone, the 5th Dimension, and Sly and the Family Stone (rest in peace) doing what they do best. If you don’t start moving to Gladys Knight and the Pips’ upbeat rendition of “I Heard It Through the Grapevine,” then I can’t help you. Borrow the DVD from the library or stream it from your preferred service.

The Write Stuff: 9 Books to Make You a Better Writer

Books require readers, but they also require writers. And not just books – writers are required for things you never think of, from greeting cards to the labels on your cough syrup and face cream jars. Writers put words in the comic book superhero’s mouth. Writers help K-Mart ship their pants, the Geico Cavemen get insurance, and made Downton Abbey so intriguing.

For a small town, Cheshire has a large number of published writers, and for every published author, we have at least four who are either dreaming of writing, or struggling with the actual task. Good writing – like acting, like music, like fine art, like athletics – starts with a natural talent. You have an ear for speech. You have a knack for conversation. Grammar was easy for you. This doesn’t mean that if you’re dyslexic, or can’t spell, or have no idea when to use a semicolon, that you can’t be a writer. That’s what an editor is for. What’s important is getting that idea out.

But how? How do you know what you need to do, when you haven’t had an English class in 20 years? You don’t remember a past perfect subjunctive case? And what do you mean by third person unreliable narrator? I just want to write a story – why is this so complicated?

Writing a story your mom loved is a good start, but to reach a larger audience, you will need grit, determination, skill, and a steel spine. But I don’t know any writers! you wail. Workshops are so expensive! I can’t take three weeks off my job for a retreat in Washington State!

Few people can, and that’s why libraries are so important! Ray Bradbury – Pulitzer winner, multiple Hugo-award winner, Emmy winner, and more – told the story of how he was too poor to afford college, so instead he read every book in his hometown library – every one – and got the education he needed that way. There are so many good books out there to help you with writing, depending on what level you’re at, what you want to know, and how you need to do it. Let’s explore a few of the best ones:

Writer’s Digest Magazine

This is a great resource if you’re just starting out. You’ll find helpful hints, articles by authors, agents, publishers, and vague contests (caution: most cost money to enter, which is how they get the prize money. They aren’t exactly a scam, but your chances of winning are low). You’ll learn about genres and what other authors are doing. This is great for a year, but after that, you realize they run the same information over and over again every year.

Sol Stein: Stein on Writing

To this day, my favorite book on writing. If you only have the patience to read one book on writing, read this one. Stein will walk you through every aspect of writing, from making the characters real to creating tension to love scenes, and he does it in everyday language you will understand. This is your college class on writing. If you’re starting out or still in school, this book will turn you into a writing powerhouse.

Ursula LeGuin: Steering the Craft  

This is probably the best book on the practice of writing I’ve ever read. LeGuin states this isn’t for beginners – she’s not going to give you the basics like Stein does; she digs a level deeper. This is your Writer’s Workshop in a box. LeGuin will walk you through the various aspects of writing, from multiple points of view, to tense, to use of adjectives and adverbs, dialogue, and the rest. She will assign you writing exercises, some easy, some not. Find a buddy, even online, and do the exercises. This is a full creative writing class for zero cost . I wound up buying myself a copy (a whopping $7).

Donald Maass: Writing the Breakout Novel 

I went into this one with a swagger, and landed on my butt. Donald Maass, owner of one of the premiere literary agencies in the country, sent me crawling back to my manuscript like it was fit for nothing but lining the litter box. Maass discusses the death of the mid-level writer, and takes you point by point illustrating what makes a novel not just good, but brilliant. I ran right back to my manuscript and dug deeper, and was so pleased with the result. This was far more useful than I’d ever hoped, and I read it with actual interest. This is a must-read, but, published in 2001, some of it is woefully dated: He says The Handmaid’s Tale is not believable, no one can follow more than one subplot (he obviously never read Game of Thrones), and to never submit by email, when that’s all agents and publishers accept today.

Annie Dillard: The Writing Life

Dillard’s another Pulitzer Prize winner, with lofty prose that requires a lot of thinking. If you are a beginner, just starting out, trying to see if this is the career you want, this is not the book for you. You’re not going to get the deeper story. If writing is burning your soul with a searing pain that keeps you awake night and day, if you can think tangentially and in leaps and in metaphors, then you will appreciate this book and take comfort in it. In short, writing is not a straight line, and the story you think you want to write will probably not be the one you wind up with as the story twists out of your control. It’s a book for the writer’s soul. 

Ray Bradbury: Zen in the Art of Writing

Bradbury, as a short story writer more than a novelist (he said the goal is to write one short story a week; going by the law of averages, at least 10 a year should be really good), isn’t going to bore you with “Do This.” Instead, this is a collection of essays delving into how he writes, and his thought processes. It’s painless and inspirational, will boost your creativity, and is one you should be reading.

Anne Lamont: Bird by Bird: Some Instructions on Writing and Life

This is another surprise book I wound up purchasing. Lamont frees you from the guilt of writer’s block by giving you permission to write one word at a time. That’s how books are written: one word at a time. She’ll drag you through all the pitfalls of writing while holding your hand, patting you on the back, and inspiring you all at the same time. 

John Mullan: What Matters in Jane Austen

Okay, this isn’t a book on writing – but if you ignore the fact that it’s Austen, and the fact some of it dates from the late 1700’s, and PBS has ground the stories into the dirt, there is a LOT of writing advice to be found in this book. Mullan picks apart Austen’s stories, discussing how she shows characterization, dialogue, even class in between the lines, describing things without ever coming out and saying them. Whether or not you’re an Austen fan (I’ve only read one, and that was 40 years ago), this is a treasure-trove of writing information if you don’t mind feeling like a total failure in her shadow.

Stephen King: On Writing

This is the first book everyone runs to, and then squeals about. I’m going to commit heresy here: Don’t bother. This book is not going to help you become a writer. It’s going to help you sympathize with King for having all the same highs and lows and writer’s blocks that you do, but primarily, this is a book on King’s journey into writing. It’s not a self-help guide. It’s a biography.

Want to improve your writing? Track down Sol Stein, Ursula LeGuinn, and Donald Maass. They will not fail you. Dean Koontz’s book, How to Write Best Selling Fiction is widely regarded as an excellent book, but is out of print and used copies go as high as $500(?!?). However, you CAN access the material (or other bits on Youtube and such) through a PDF here on Scribd.com (beware of frequent ads).

Not-So-Scary Halloween Reads for Kids

Now that the temperatures have dropped, I’m kicking my horror obsession into high gear. I’m going through my Audible audiobook purchases and listening to anything remotely paranormal, and I’m watching as many delightfully flawed 1970s horror films as I can find on my streaming services. The rest of my household, though, isn’t quite on board with my level of horror. My four-year-old gets up and starts to leave the room during particularly tense moments of Sofia the First. My two-year-old cries when he wakes up at 6:30am and it’s still dark.

Even though they’re not ready for it, my kids are still drawn to the spooky stuff. They’re fascinated by ghosts and skeletons. We’re a long way off from listening to the Spooked podcast together, but they can handle the horror equivalent of a balance bike and a sturdy helmet. These are some of the not-so-scary titles we’ve been enjoying this fall, in no particular order.

Leo: A Ghost Story written by Mac Barnett, illustrated by Christian Robinson (2015)

Leo is a little ghost who finds himself unwanted and unappreciated by his house’s new (living) residents, so he decides to wander the city and discovers a lasting friendship. Mac Barnett is one of my favorite authors to read out loud, and Robinson’s signature cutout-style illustrations are adorable with just the barest hint of spookiness from the blue color palette.

The Skull: A Tyrolean Folktale by Jon Klassen (2023)

You’ll recognize Klassen’s signature monochromatic palette and impactfully sparse prose from picture books like I Want My Hat Back. The Skull is a more substantial chapter book about a girl who runs away from home and befriends – you guessed it – a skull. Both my kids adore this book, which has a creepy-not-scary vibe and takes 15 to 20 minutes to read out loud. Even my two-year-old will sit for the whole thing. As for me, I have been haunted by the story’s unanswered questions that don’t seem to cross the kids’ minds. (If you’ve read Sam and Dave Dig a Hole, you know what I mean.)

There’s a Ghost in This House by Oliver Jeffers (2021)

Here’s another picture book for kids obsessed with ghosts. This one follows a girl around her house as she looks for the ghosts that supposedly live in her house. She can’t seem to see them – but the reader can, with help from transparent pages that overlay the old-fashioned photographs of rooms. It’s a clever and entertaining book that we’ve been re-reading from cover to cover. (I mean it. You only get the full story if you look at the endpapers.)

In a Dark, Dark Room: And Other Scary Stories retold by Alvin Schwartz, illustrated by Dirk Zimmer (1984)’

You probably read this classic book yourself as a kid, or had somebody read it to you. Are the stories as satisfying as Schwartz’s Scary Stories to Tell in the Dark? No, but this smaller tome won’t accidentally give your kids nightmares if you pick the wrong story. (Not that I know from experience or anything. Cough cough.) My two-year-old lights up with anticipation of the jump scare I insert at the end of the title story.

A Christmas Carol by Charles Dickens, illustrated by Brett Helquist (2009)

There’s a tradition in the UK of telling ghost stories at Christmas, and what better story to turn to than the GOAT of Christmas ghost stories? The illustrations are what make this book work. You’ll recognize the style of Brett Helquist from the gloomy covers of A Series of Unfortunate Events by Lemony Snicket. The prose seems to go over my kids’ heads, but as an adult it’s loads of fun to read Scrooge’s dialogue aloud and give it the weight of King Lear mourning the dead Cordelia.

Gustavo, the Shy Ghost by Flavia Z. Drago (2020)

If you thought Leo was cute, then Gustavo might take the cake – or rather, pan de muerto. Gustavo is too shy to talk to the other monster kids, so he decides to put on a violin concert instead. It’s a relatable story in beautiful colors inspired by Mexico’s Day of the Dead celebration. Fans of the movie Coco will enjoy the color palette and musical theme, but this sweet picture book thankfully won’t require adults to grab a tissue. (Not that I know from experience or anything. Cough cough.) 

Scary Stories for Young Foxes by Christian McKay Heidicker (2019)

My four-year-old knows the creepy stuff is out there. To scratch the itch that the cute ghost stories can’t satisfy, we’ve been dabbling in some middle-grade books like Scary Stories for Young Foxes. It’s a series of interconnected stories about two juvenile foxes and the horrors they endure as they try to get back to their families. There’s a beloved teacher who turns rabid, a murderous father, and a terrifying take on a classic children’s author. Nothing is gratuitous, though, and it all builds to a satisfying ending. If you’ve been reading Hansel and Gretel with nary a nightmare, it might be worth a try.

The Graveyard Book by Neil Gaiman (2008)

We’re also giving a try to this middle-grade book authored by dark fantasy master Neil Gaiman. It’s the story of Bod, a boy who is raised from infancy by the inhabitants of a graveyard after his family is killed. Despite the gloomy premise, the fantasy elements outweigh the horror parts; readers of Gaiman’s adult works like Norse Mythology will be familiar with the tone. And each chapter is episodic like Scary Stories for Young Foxes, making it a good match for younger attention spans.

Recent Reads for Hesitant Historians

I am surrounded by history lovers. My husband is a history professor who uses me as a sounding board when he’s talking through new articles. A good friend does deep dives into English monarchs, and she shares memes that mash current events together with Medieval art. And I have to confess: I have no idea what they’re talking about.

I’m very useful when you want to assemble some IKEA furniture, or if you want to differentiate between an American crow and a common raven, but listening to me explain the American Revolution is like watching an episode of Drunk History (and sadly, without the negronis). I don’t dislike history. It’s just that the kind of history you get in school – politics, wars, rich people – does nothing for me. What I want is an exhibit of decorative arts, a reconstructed peasant house, a display of medical instruments. Maps of migrations laid over topography or ecological changes. A poster. A piece of metal. I want something that’s alive with meaning and has a story to tell.

If a relaxing evening involves hooks, needles, or rippers:

Threads of Empire: A History of the World in Twelve Carpets by Dorothy Armstrong (2025)

I can’t get through biographies of monarchs, but give me a book on how their clothing was constructed and I will drink it up like a chocolate fountain in Versailles. Threads of Empire tickles the same part of me that loves dresses and chain mail at art museums. This isn’t just about who owned history’s beautiful rugs, but the people that made them, the materials and techniques they were working with, and what was going on in their world.

Related read:

Silk: A World History by Aarathi Prasad (2024)

This is another great read that takes a close look at how a prized textile is made, then zooms out to examine its place in time and geography.

If you never got past your childhood fascination with pirates:

The Wager: A Tale of Shipwreck, Mutiny, and Murder by David Grann (2023)

We’re attracted to stories of things gone wrong, whether it’s hikes or music festivals. As you can guess from the subtitle of this book, there are quite a few things that went wrong with the HMS Wager in 1741. This is a true crime novel, a survival tale, and a look into 18th century British naval life – did you know expeditions routinely sailed with dedicated scientists on board? – with a little dusting of world politics. Grann crafts an engaging narrative well worth the hype. 

Related read:

The Wide Wide Sea: Imperial Ambition, First Contact and the Fateful Final Voyage of Captain James Cook by Hampton Sides (2024)

If you can’t get enough of the British Navy, you can circumnavigate again with Hampton Sides’ bestseller from last year. Sides’ narrative doesn’t move with the same momentum as Grann’s book, but it’s a voyage well worth taking.

If you can’t look away from technological disasters:

Challenger: A True Story of Heroism and Disaster on the Edge of Space by Adam Higginbotham (2024)

Nobody synthesizes story and science quite like Adam Higginbotham. Last year he released this book on the Challenger space shuttle, which exploded during liftoff in 1986. He’s on par with the best thriller writers in terms of building suspense, and he’s just as adept at breaking down complex engineering concepts.

This book has haunted me: not only in its emotional impact, but in how amazing it is that we’ve accomplished space travel at all. It compelled me to make a pilgrimage to the Intrepid Museum in Manhattan to get an up-close look at the Enterprise, the very first orbiter NASA made for the space shuttle program.

Related read: 

Midnight in Chernobyl: The Untold Story of the World’s Greatest Nuclear Disaster by Adam Higginbotham (2019)

Higginbotham is making quite a name for himself writing about 1980s technological disasters. His award-winning debut focused on the Chernobyl nuclear meltdown, and it’s just as good (and horrifying) as Challenger.

If you’re a news junkie:

Looking at Women Looking at War: A War and Justice Diary by Victoria Amelina (2025)

“I have just bought my first gun in downtown Lviv,” starts the diary of this Ukrainian novelist and mother turned war documenter. Amelina’s diary tells the story of how she and other women – librarians, lawyers, writers – were experiencing the war in Ukraine and participating in the resistance. She was killed by a Russian missile in 2023, and this book collects her unedited and uncompleted notes. It’s a chilling reminder that her life was suddenly cut short at 37 years old.

Related read:

Secondhand Time: The Last of the Soviets by Svetlana Aleksievich (2017)

Alexievich is well-known for her oral histories of the Soviet Union, and this book is an accessible look at how people in Russia experienced the fall of the Soviet period and the emergence of a new Russia. The experiences and viewpoints are as diverse as if you’d selected a random group of Americans and asked them how they viewed the 2024 election. If you’re looking to understand modern Russia, this is a really great place to start.

If David Attenborough narrates your inner thoughts:

The Beast in the Clouds: The Roosevelt Brothers’ Deadly Quest to Find the Mythical Giant Panda by Nathalia Holt (2025)

Can you imagine a world in which people think pandas are imaginary creatures? Apparently, it was only a century ago. This book chronicles the sons of Teddy Roosevelt (who lent his name to a different type of bear) as they explored the Himalayan mountains in search of this very real animal.

Related read:

Every Living Thing: The Great and Deadly Race to Know All Life by Jason Roberts (2024)

You’ve probably heard of Carl Linnaeus, one of the most famous Enlightenment-era catalogers of the natural world. But have you heard of mathematician and fellow naturalist Georges-Louis Leclerc, Comte de Buffon? There are reasons for one man’s obscurity and the other’s fame, Roberts argues, including the convenience of Linnaeus’ theories of racial hierarchies and Leclerc’s aristocratic status (probably not the best thing to be in 1780s France).

If you’re fascinated by architecture and buildings:

Twelve Churches: An Unlikely History of the Buildings That Made Christianity by Fergus Butler-Gallie (2025)

Butler-Gallie presents a fun and often funny history of the world’s largest religion by focusing on twelve buildings in particular. You’ll visit an amazing church complex in Ethiopia that was carved into volcanic rock with medieval tools, Japan at the cusp of its isolationist Edo period, and the site of a tragic bombing during the Civil Rights movement. Religion is a fascinating way to view world history, and this book has something for everyone regardless of your personal faith.

Related read:

The Bookshop: A History of the American Bookstore by Evan Friss (2024)

From the publisher: “Evan Friss’s history of the bookshop draws on oral histories, archival collections, municipal records, diaries, letters, catalogs, and interviews with leading booksellers to offer a fascinating look at this institution beloved by so many–not just as a merchant, but as a gathering place for like-minded people who cherish books.”

If you held onto your science textbooks from college:

Say Anarcha: A Young Woman, a Devious Surgeon, and the Harrowing Birth of Modern Women’s Health by J. C. Hallman (2023)

If you enjoyed Rebecca Skloot’s The Immortal Life of Henrietta Lacks or the many fistulas in Mary Roach’s Gulp, then this one is for you. Modern gynecology and obstetrics are relatively recent innovations, and their development was due to experimentation on poor and enslaved women, such as Anarcha. This books covers what we know about her, including her life beyond the operating table.

Related read: 

The Radium Girls: The Dark Story of America’s Shining Women by Kate Moore (2017)

Imagine you’re a young woman who just found a great-paying job painting glowing watch faces in Waterbury. Now, imagine you and your coworkers start getting too sick to work – and your employers try to paint you as a promiscuous partier. This is the horrifying true story of the radium girls, factory workers in the early 20th century who were exposed to radioactive material while business owners looked the other way. It’s also the story of the uphill battle for worker protections and safety standards.

And another one just for fun:

A People’s History of the United States by Howard Zinn (1980)

Instead of a triumphant story of great mens’ achievements, Zinn’s history looks at everyday people, such as workers in early factories, immigrants, women, native Americans, slaves, and servants – those whose exploitation arguably fueled the power of those great figures. It’s been republished several times since its release in 1980, and it has influenced hundreds of works (including titles on this list) that take a more critical look at our national narratives.

Able and Willing

Disability is a loaded word. 

I won’t debate the semantics of the term, what the current politically correct term is, or how to make your workplace more variant friendly.

Let’s talk about something far more inflammatory. The rights of the disabled to carry out adult relationships. At best, a disabled person is able to find a partner despite their difficulties, marry (or not), and live a happy adult life together, with or without kids (popular example: the TV show Little People, Big World). Sometimes, it’s disabled people fighting in court for the right to marry or raise their own children (the movie I Am Sam). At the very worst, it’s vulnerable people being preyed upon, taken advantage of, or controlled to the point of involuntary sterilization.

I grabbed the book Hunchback, partly because it was short, and partly because I’ve been in the field of disabilities for 40 years. Hunchback, a novella by Saou Ichikawa, was not the book I’d expected, despite winning multiple awards. Ichikawa’s character, Shaka, suffers from congenital myopathy (same as the author—write what you know), which has left her with progressively weak muscles. Her back is so hunched over she can’t breathe when holding a book, and she spends half the day using a ventilator. She can walk short distances, but her body is twisted and one leg is far shorter than the other. She has a tracheostomy, which makes talking difficult, so she uses a lot of alternative communication devices. Shaka spends her time writing erotica online, the money from which she spends on food for poor people and women. 

Winner of several Japanese awards, Hunchback calls out ableism on many levels. Ichikawa considers it political: Disabled people are hidden away by society, never considered because they’re never seen. People in wheelchairs are rarely mentioned in literature at all, unless they’re being “cured,” like in Heidi or A Secret Garden. Disabled people are portrayed as a drain on society, dependent on charity, so by making a wealthy disabled character (who generates income through pornography), she pokes a hornet’s nest.

Another book that touches on the subject of sexual autonomy is James Cole’s Not a Whole Boy. Cole was born in the 60’s with a severe case of exstrophy – most of his organs were born outside his body, and his pelvis malformed. Most babies with this condition do not survive. Due to Cole’s mother’s determination and a great team of doctors, Cole managed to thrive despite severe obstacles. While he seemed more or less normal to other kids, Cole hid the fact that he had double ostomies – all his waste was collected in bags, as he didn’t have the needed parts and couldn’t use a toilet. As he got older and puberty kicked in, it became necessary to undergo multiple surgeries just to have a sense of comfort, normalcy, and proper biological function. Cole’s book documents his struggles with medieval children’s hospitals, lack of pain management, and his eventual success with a career in art and film – certainly not hidden away.

A book that took me by complete surprise was Riva Lehrer’s Golem Girl, a golem being a creature formed from dirt or clay. Riva was born with Spina Bifida in 1958, a time when most afflicted infants did not survive, and almost certainly didn’t walk. She suffers dozens of painful surgeries to keep her mobility, most of which do nothing to ease her issues – she’s just a guinea pig for the surgeons. Although she attends a grade school for the disabled (disability laws hadn’t been written yet), she attends a mainstream high school, then university, where she gets a degree in fine art, all while dealing with surgeries and intense feelings of revulsion toward herself. Amplifying it is her mother’s overprotective codependency, spitting out helpful comments such as “You don’t need a nose job. No one wants to marry a cripple,” and “You shouldn’t have children; pregnancy will just mess up your spine worse,” – culminating in an involuntary hysterectomy at 15 on the mother’s order. 

Riva goes on to have multiple affairs with both men and women. While some relationships work out, many times she’s still hit with prejudice – “I can’t love a cripple.” Riva remains unstoppable. She becomes more comfortable with herself through meeting up with other people – often activists – with disabilities. As an artist, she gains renown (and awards) through her paintings of disabled people (and others) she has met. 

This book was so hard to put down, and read like you were in the middle of a conversation with her. Lehrer doesn’t go into detail on her disability or surgeries; she talks about herself, not her medical issues. After doing time as an anatomical artist, she sees people not so much as disabled, but as human variants – no one is “normal,” there is no “normal,” just human variations. But everyone has a right to love and happiness.

At the heart of it, people with physical disabilities are still people. It doesn’t mean they don’t have the same dreams, desires, or feelings as people who aren’t. All of these books will give you deep new insights into the strength of humanity.